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NEWBORN TOBY’S FIGHT FOR LIFE: HOW A GROUNDBREAKING TREATMENT SAVED A BABY BORN WITH CANCER

When Jenaya was 28 weeks pregnant, doctors discovered a strange mass on her baby’s arm during a check-up. At the time, it was believed to be harmless, and the family held on to hope that it would not affect their child’s life.

Further tests revealed that baby Toby had infantile fibrosarcoma, a rare and serious form of cancer. The diagnosis came as a devastating shock to his parents, who had only just welcomed him into the world.

At only three weeks old, Toby began chemotherapy.

His tiny body had to endure more than most could imagine — frequent fevers, infections, and long days and nights in the hospital. Each moment was filled with uncertainty, as his parents stayed by his side, holding on to hope.

“There were times we felt completely overwhelmed,” Jenaya shared softly. “He was so small, yet he had to fight such a big battle. But even then, he never stopped showing us his strength.”

As treatment continued, doctors raised the possibility that Toby’s arm might need to be amputated to stop the disease from spreading. It was a heartbreaking prospect — one no parent ever wants to face.

“We kept believing there had to be another way,” his parents said. “We just couldn’t imagine his future without trying everything possible first.”

Through advanced genetic testing from the ZERO Childhood Cancer Program, doctors discovered a specific mutation in Toby’s tumor — one that could potentially respond to a targeted treatment called crizotinib.

The approach was new, especially for a baby so young, but it offered a chance.

Toby began the treatment, and within just a few weeks, something incredible happened.

The tumor started to shrink — and it kept shrinking.

What once felt like an impossible situation slowly turned into a story of hope.

Today, Toby is a joyful and energetic toddler. He walks, laughs, explores the world around him, and continues to grow stronger each day — a living reminder of resilience and the power of medical progress.

“We look at him now and feel so grateful,” his family shared. “He’s been through so much, yet he smiles like nothing ever stopped him. He’s our little miracle.”