“I HAVE NEVER BEEN ASHAMED OF MY SON” JEREMY, WHO IS LIVING WITH HYDROCEPHALUS AND A RARE SKULL CONDITION, CONTINUES TO AMAZE HIS FAMILY WITH EVERY NEW MILESTONE

While many people notice the shape of Jeremy’s head, his mother sees something far more remarkable—a little boy whose courage has carried him through five surgeries and countless challenges.
Jeremy is living with hydrocephalus, a condition caused by a buildup of fluid in his head, and part of his skull did not fully develop. Because that area isn’t fully protected by bone, the right side of his head has a noticeable outward shape as his brain has grown toward the area with less skull coverage.

Since birth, Jeremy has undergone 5 surgeries, 3 on his head, and Jeremy has had a VP shun tube implanted from his head to his stomach. He has also had surgery to repair his cleft lip and several procedures to treat hernias.
Doctors hope that one day, when Jeremy is older and his skull has developed further, he may be able to receive a custom prosthetic skull. For now, however, his treatment continues one careful step at a time.

While many people focus on Jeremy’s appearance, his mother sees something much more important.
“I’ve never been ashamed of having a special child like Jeremy,” she said.

During her pregnancy, doctors had already explained her baby’s condition and discussed difficult decisions with the family. But Jeremy’s mother never stopped believing in him.
“When he was still in my womb, he was always moving and kicking,” she recalled. “I accepted him exactly as he was. No matter what happened, he was my son, and I wanted to give him every chance.”

That love has carried them through years of hospital visits, surgeries, and rehabilitation.
Today, Jeremy continues to make progress that fills his family with hope.

Last year, he achieved something his parents had long prayed for—he learned to sit. Although he still needs support behind his back and can only sit independently for about two minutes at a time, to his family those two minutes mean everything.
“The important thing is that every year he makes progress,” his mother said with a smile. “Hopefully, next year he will be able to do even more.”

Jeremy has also become more active and expressive. He can eat on his own, play, show his emotions, and interact more with the people around him—small victories that his family celebrates every single day.
His mother also responds kindly to people who wonder why his head has not already been reconstructed.

“Many people say they would immediately want surgery so his head could look round,” she explained. “We would love that too if it were possible. But these treatments can’t happen overnight. Everything has to be done gradually, following a long medical process.”
Despite the challenges that still lie ahead, Jeremy’s family chooses to focus on how far he has already come instead of how far he still has to go.

Every smile, every new skill, and every small achievement reminds them that progress is measured in moments—not perfection.

Source: Facebook