LITTLE LARINHA HAS OSTEOGENESIS IMPERFECTA AND HAS SPENT ALMOST HER ENTIRE FIRST YEAR IN HOSPITAL, NOW FACING HYDROCEPHALUS AFTER 𝖲𝖪𝖴𝖫𝖫 𝖥𝖱𝖠𝖢𝖳𝖴𝖱𝖤𝖲

Little Larinha has spent almost every day of her one-year life surrounded by hospital walls.
Born in Ribeirão Preto, São Paulo, she came into the world with fractures affecting her arms, skull and chest. Doctors diagnosed her with osteogenesis imperfecta, commonly known as brittle bone disease.

Since then, this tiny girl has faced countless difficult days. There have been long nights when sleep was hard to come by, moments of discomfort that left her parents worried, and one medical challenge after another. Yet Larinha has continued to hold on, showing a strength far beyond her tiny size.

Now, her family is facing another frightening chapter.
Larinha’s head has become increasingly swollen, and doctors believe she may have developed hydrocephalus following fractures to her skull. Her condition has become increasingly complex, and remaining in hospital is no longer considered a sustainable option.

Her mother Fernanda gave up her career as a hairdresser to dedicate herself entirely to her daughter, while her father Edson works as a production assistant to support the family.

Doctors have given the family a deeply difficult prognosis. But Fernanda and Edson are still holding on to one simple wish: to bring their little girl home.
A room is ready for Larinha, and her four-year-old sister is waiting to have her beside her.

But before that can happen, Larinha needs a Trilogy mechanical ventilator, costing around 65,000 Brazilian reais, so she can receive the necessary respiratory support at home.

“We have spent so long beside her hospital bed,” her family shared. “All we want now is for Larinha to feel the comfort of home, surrounded by the people who love her.”


After a year of hospital rooms, difficult nights and countless medical challenges, her family hopes the next place Larinha wakes up will finally be her own home.
Source: Instagram