Due to a rare disease, the British boy has an incredibly pitiful face.

On May 6th, little angel Ewan Knox was born into the loving arms of his parents. However, their happiness was short-lived when bad news struck.

Doctors at the Royal Victoria Hospital in Newcastle, England, diagnosed Ewan with Hallermann-Streiff syndrome. This syndrome causes patients to have a large forehead, small eyes (with cataracts), a small nose, and underdeveloped features. According to statistics, this is a rare syndrome, with only 150 cases worldwide.

Upon early detection of Ewan’s condition, doctors and his family worked together to treat him. Five weeks after treatment, and with his health stabilizing, Ewan was able to return home.

A year later, the boy with the rare disease had to be hospitalized again due to a worsening of his condition. For months, the boy was constantly in and out of the hospital. By February of this year, Ewan’s condition had worsened significantly.

Ewan’s mother, Vicky, said, “Ewan started having real difficulty breathing, so he had to rely on a breathing apparatus 24/7. Since then, his health has deteriorated.”

Doctors determined that Ewan had very little time left to live.

Vicky added that things got worse when, one day, Ewan was suddenly diagnosed with a heart attack and pulmonary hypertension. Despite treatment, side effects damaged his stomach lining, making him unable to eat or drink.

After a long battle with their son, on April 22nd, Ewan’s parents were forced to decide to remove the breathing apparatus so that he could pass away peacefully and without further suffering.

Since the death of her child, Vicky and her husband have devoted all their energy and attention to charity work, fundraising, and raising awareness about childhood illnesses.

“I used to care for my child 24 hours a day, 7 days a week, but now she’s gone, and I have nothing left. This has been incredibly difficult,” Vicky shared.