Mom Fighting to Save Daughter, 2, with Rare Condition: ‘How Long Do I Have with You?’

A mother is fearful for her daughter’s life as she attempts to raise money for the medical treatment the toddler desperately needs.
Ellen Maughan from Perth, Australia, explained to local outlet 7 News that her daughter Makaia underwent surgery at just 3 days old after it was discovered that she has Alagille syndrome (ALGS), a rare genetic condition that affects the heart, lungs, liver and bones.

The family has exhausted all treatment options for the 2-year-old in their home country and are now willing to travel nearly 11,000 miles away to Chicago.
“It’s the only hospital we’ve heard back from that they can potentially do something, and obviously that was the best feeling in the world,” Maughan told 7 News.
The mother explained that the arteries from Makaia’s heart to her lungs are still the same size as a newborn’s, which is causing her heart to fail.
The toddler has spent more time in the hospital because of her condition than most people ever will in a lifetime, per 7 News.
“I cry at night putting her to bed. Like, how long do I have with you?” Maughan asked.

The mother needs to raise $150,000 AUD (approximately $107,000 USD) for specialists to assess Makaia, as well as ten times the amount for the surgery bill.
She described the sum as “a crazy amount of money to get together.”
A GoFundMe to raise $1.8 million AUD (approximately $1.2 million USD) has amassed over $100,000 AUD (around $71,000 USD) as of Aug. 17.
The toddler’s family hopes Makaia will grow up to experience life’s milestones.
“Let’s get her to school, you know, let’s, let’s get everything she deserves. Let’s get her married one day,” Makaia’s aunt Caitlin told 7 News.
Specialist cardiologist Dr. Michael Nguyen added,“Unfortunately, there are conditions we just can’t treat in Australia. So going to a specialized centre is very important.”