A 12-year-old boy in West Sumatra is continuing a long and difficult medical journey after being diagnosed with two rare conditions that have significantly affected his daily life. Rafa has lived for years with macrocephaly and osteogenesis imperfecta, a disorder that causes bones to break easily, often without clear cause.

According to his family, Rafa’s health challenges began early in childhood. Over the years, he has suffered frequent fractures, requiring repeated medical care and extended periods of rest. Regular hospital visits are necessary to monitor his condition, manage pain, and reduce further complications.

Rafa currently lives with his mother, Yesi, and his younger sibling. His father left the family several years ago, leaving Mrs. Yesi as the sole provider and caregiver. To support her children, she earns a modest income by selling fried snacks in her community.

The financial burden has made consistent medical care difficult. Mrs. Yesi explained that there are times when Rafa cannot see his doctor for months due to a lack of funds. “There are moments when I have to choose between daily necessities and medical visits,” she said quietly. She added that basic items such as milk and diapers are often beyond the family’s reach.

As Rafa grows older, his condition has weakened his body further, leaving him almost completely dependent on his mother for daily care. He requires constant assistance with movement and basic needs, placing both physical and emotional strain on the household.

Despite the challenges, Mrs. Yesi remains committed to caring for her son. She shared that she relies on faith and perseverance to continue. “I ask for strength and patience every day so I can keep going for my children,” she said.

Those close to the family say Rafa remains remarkably positive. Even in pain and limited by his condition, he is often seen smiling. His quiet resilience has become a source of encouragement for his mother and those who know his story.

Rafa’s situation highlights the difficulties faced by families dealing with long-term medical conditions, especially when resources are limited and support systems are fragile. His mother hopes that by sharing their experience, more attention will be given to families in similar circumstances who continue to struggle in silence.

For now, Rafa continues his recovery one day at a time, supported by his mother’s dedication and his own determination to keep moving forward despite the obstacles he faces.