A one-year-old girl named Kinara is facing a difficult health journey as she lives with a rare medical condition that affects the development of her skull and facial bones. Doctors say she needs urgent treatment, but the cost is far beyond what her family can afford.

Kinara has been diagnosed with craniofacial dysplasia, a rare condition caused by a genetic mutation that leads to abnormalities in the structure of the skull and face. Because of this disorder, her eyes appear unusually large, and she is unable to fully close them even while sleeping.

According to her mother, Siti, Kinara often sleeps with her eyes wide open. To prevent them from becoming dry during the night, she carefully places medical tape over her daughter’s eyelids while the child rests.

“It’s very hard for me to see her like this,” Siti shared emotionally. “Every night I worry about her comfort and whether she is able to rest peacefully.”

Kinara’s condition causes significant discomfort. Her parents say she frequently cries throughout the day due to persistent pain in her head and eyes. The family believes the pressure around her skull contributes to the distress she experiences daily.

In addition to her craniofacial condition, Kinara also has a lung disorder that affects her breathing. The respiratory issue sometimes causes short episodes where she struggles to breathe normally, leaving her parents constantly concerned about her safety.

Doctors have advised that Kinara should undergo surgery as soon as possible to correct some of the structural problems caused by the condition. Medical specialists warn that delaying treatment could worsen her health and create further complications as she grows.

However, the cost of the procedure is extremely high—estimated to reach hundreds of millions of Indonesian rupiah, an amount that Kinara’s family simply cannot manage.

Her father, Yusup, works as a small watch repairer. His income is uncertain and depends entirely on whether customers come to his small shop. On good days, he may earn around 70,000 rupiah (about a few U.S. dollars). But there are many days when no customers arrive at all.

“With work like this, sometimes there is income, sometimes there isn’t,” Yusup explained. “But when I look at my daughter, I just wish I could do more to help her.”

Beyond the financial challenges, Kinara’s family has also faced emotional hardship. Siti says some people in their community have made unkind comments about the child’s appearance, which has been deeply painful for the parents.

“I often cry at night,” Siti said quietly. “It hurts when people don’t understand what she is going through.”

Despite the challenges, Kinara’s parents remain determined to seek treatment that could improve their daughter’s quality of life. They continue to hope that medical support and compassion from others may help make the necessary surgery possible.

For now, the small family focuses on caring for Kinara day by day, hoping that the opportunity for treatment will come soon so their little girl can have a healthier future.