What should have been the happiest moment of Gabe and Kaylene Dipple’s lives quickly turned into weeks of uncertainty, hospital stays, and nonstop medical care after the birth of their second son.

On January 4th, the couple welcomed baby Theodore “Theo” Dipple into the world. But moments after his birth in Regina, doctors realized something was seriously wrong.

Theo was later diagnosed with Treacher Collins Syndrome (TCS), a rare genetic condition that affects the development of the bones and tissues of the face and can cause severe breathing and feeding difficulties.

Shortly after birth, baby Theo was transferred to the Jim Pattison Children’s Hospital in Saskatoon, where he remains under specialized care.

Because his airway was unstable, doctors performed a tracheotomy surgery to help him breathe safely. He is now waiting for another important procedure to place a feeding tube directly into his stomach so he can receive nutrition more safely.

For the past several weeks, Theo’s parents — Kaylene and Gabe — have barely left his side.

The couple has undergone intensive hospital training to learn how to care for their son’s complex medical needs at home, including tracheotomy care, tube feeding, oxygen monitoring, heart monitoring, and emergency resuscitation procedures.

“Nothing prepares you for hearing your newborn needs help to breathe,” Kaylene shared. “But every time Theo squeezes our fingers or opens his eyes, we know he’s fighting so hard.”

Despite the emotional and financial challenges, the family says their little boy continues to inspire them every day.

“He’s been through more in a few weeks than most people face in a lifetime,” Gabe said. “But Theo still has the sweetest, calmest spirit. We just want to give him the best life possible.”

Doctors have warned that Theo’s journey is far from over. As he grows older, he will likely require additional specialized surgeries, including procedures in Toronto to help expand his airway and improve his breathing.

While some medical supplies and support programs may help cover part of the expenses, many daily care needs will still fall on the family. Theo will require constant monitoring and cannot be left with anyone who has not received specialized training.

Because of this, Kaylene will be unable to return to work for several years, while Gabe — who is self-employed — has also had to reduce his work hours to help care for Theo and their older son, Arthur.

Still, through every difficult moment, the family remains focused on one thing: bringing their baby boy home safely.

“Our dream now is simple,” Kaylene said softly. “We just want Theo home with us, surrounded by love, where he belongs.”