‘WE THOUGHT THE WORST WAS BEHIND US’: LITTLE GIRL’S RARE BRAIN CONDITION RETURNS YEARS AFTER LIFE-SAVING SURGERIES

A Texas family thought their little girl had overcome the biggest challenge of her life.
Now they’ve learned the same serious condition that nearly changed everything has returned.
If you’ve ever watched your child complain of a headache and wondered whether it was something more, this Amarillo, Texas family’s story is one you’ll never forget.

Seven-year-old Ka’Vayah was just 4 years old when she suddenly began experiencing seizures.
Hours later, doctors discovered bleeding in her brain.
The cause was something her family had never even heard of.
An arteriovenous malformation, or AVM, a rare tangle of abnormal blood vessels that unexpectedly ruptured.

She was rushed into emergency brain surgery, where doctors worked to stabilize her condition.
Over the next two and a half years, Ka’Vayah underwent multiple brain surgeries, including an 11-hour procedure to remove the AVM and reconstruct part of her skull.
Complications from those procedures eventually required doctors to place a permanent shunt to help drain excess fluid around her brain.
Her family believed they were finally moving forward.

Then, just days ago, another angiogram changed everything.
Doctors told them the AVM had returned.
Her family says it now carries the possibility of another rupture, and Ka’Vayah will soon begin radiation treatments in hopes of reducing that risk.
Because all of her specialists are nearly four hours from home, Serenity says they’re now trying to relocate closer to Oklahoma City so Ka’Vayah can receive the ongoing care she’ll need over what could become years of treatment.

When Serenity reached out to me, one thing she wanted other parents to hear stood out.
She said before all of this happened, Ka’Vayah was a healthy little girl.
Their lives changed in a single day.
She hopes other families will never ignore persistent headaches or unexplained seizures in a child, and always trust their instincts if something doesn’t feel right.
Source: GoFundMe