Banner

DIAGNOSED WITH BOHRING-OPITZ SYNDROME, LITTLE CYRUS IS SHOWING THE WORLD A STRENGTH FAR BIGGER THAN HIS SIZE

Eight-month-old Cyrus Putman may be small, but the impact he has had on his family’s life is immeasurable.

Born to Brandon and Savannah Putman of Anniston, Alabama, little Cyrus has already faced more medical challenges in his first months of life than many people experience in a lifetime. Yet despite everything, his parents say he continues to greet the world with bright eyes, soft curls, and a smile that melts hearts instantly.

Just weeks ago, the family finally received the diagnosis that explained so many unanswered questions surrounding their son’s health.

Cyrus was diagnosed with Bohring-Opitz Syndrome (BOS), an extremely rare genetic disorder with fewer than 300 diagnosed cases worldwide each year. The condition can cause developmental delays, feeding difficulties, growth challenges, and other serious medical complications.

For Brandon and Savannah, the diagnosis brought both heartbreak and clarity.

“I’ve wanted to be a mom since I can remember, and it took a lot for my husband and I to get pregnant with Cyrus,” Savannah shared.

“Nothing prepared us for the world our lives would become overnight.”

Even before receiving the official diagnosis, Cyrus had already undergone major medical procedures. At only a few weeks old, he underwent open-heart surgery. His tiny body continues to face daily challenges, and he is expected to undergo cranial surgery in the near future as doctors work to improve his quality of life.

Still, his parents say Cyrus remains a joyful and loving child.

He loves being held close in his parents’ arms. His curly hair draws admiration everywhere he goes, while his bright eyes and gentle smile leave lasting impressions on everyone who meets him.

“He may have a rare condition, but to us, he’s simply our beautiful little boy,” Brandon said. “Every smile from Cyrus feels like a reminder to cherish every moment.”

Savannah added, “We don’t wake up every day focused on fear. We focus on loving him, celebrating him, and giving him the happiest life possible.”

The Putmans are now sharing Cyrus’s story to raise awareness about Bohring-Opitz Syndrome and to help others understand the reality families face when living with rare conditions.

More than anything, they want the world to see beyond the diagnosis.

“We want people to know that Cyrus is more than his condition,” Savannah said. “He has changed our lives in the most beautiful way.”