A father who chose to remain beside his critically ill newborn son in intensive care says he lost his job after missing work to support his family during the baby’s medical crisis.

Felipe was dismissed during his probationary period after taking time away from work to stay at the hospital with his son, Lohan, who has been hospitalized since the day he was born.

According to the family, Felipe provided medical documentation and explained the circumstances to his employer. But with his newborn fighting serious health complications, he says he was ultimately left without a job.

The decision came as Lohan’s mother, Lohany, was recovering from a C-section and was unable to spend long periods at the hospital during the first days after birth.

“Someone had to be there for him,” the family said. “Felipe chose to stay with his son.”

Now four months old, little Lohan has never experienced life outside a hospital room.

Born struggling to breathe, he was transferred directly to intensive care and diagnosed with epidermolysis bullosa, a rare genetic condition often known as “butterfly skin disease” because the skin is as fragile as a butterfly’s wings.

For children with the condition, even gentle contact can cause painful wounds, blisters, and skin breakdown.

Since birth, Lohan has faced challenge after challenge.

He has required breathing support, battled multiple infections, completed seven rounds of antibiotics, and undergone surgery to help him receive nutrition because feeding normally was not possible.

His tiny hands and feet have been among the most difficult areas to heal. Family members say his face is often marked by wounds because he instinctively touches it with his hands — a habit he had even before birth.

Yet despite months of medical procedures and constant care, those closest to him say Lohan continues to surprise everyone around him.

“He smiles at everyone,” a relative said. “If someone talks to him, he tries to respond. When cartoons are playing, he watches them with complete fascination.”

Those moments have become a source of strength for a family facing overwhelming circumstances.

While Lohan remains hospitalized, a crib already waits for him at home.

His parents dream of the day they can finally bring him through the front door.

But life outside the hospital is far from easy.

Seven family members currently share a single-room home, and there is no stable source of income. Lohany earns occasional money doing hair and nails when opportunities arise, while relatives have stepped in to help cover everyday expenses.

Meanwhile, Lohan’s medical needs continue to grow.

The specialized dressings required to protect his fragile skin must be changed regularly and can be costly. Diapers, supplies, transportation, and ongoing treatment add further pressure to a family already stretched to its limits.

Still, his parents refuse to give up hope.

“Every smile he gives us reminds us why we keep going,” a family member said. “He has been fighting since the moment he was born, and we will keep fighting alongside him.”

For now, the tiny “butterfly baby” remains in hospital, waiting for the day he can finally go home — to the crib that has been ready for months and the family who cannot wait to hold him there.