Born on November 10, baby Kylie entered the world already facing an unimaginable challenge. She was diagnosed with Surfactant B deficiency, a rare genetic condition that prevents the lungs from functioning properly.

For Kylie, there was only one chance at survival — a double lung transplant.

On April 17, that miracle finally came. Kylie received new lungs, giving her family hope for a brighter future. But the road since then has been anything but easy.

Today, Kylie is back in the hospital. Doctors have found fluid in her lungs along with signs of serious organ rejection — a dangerous complication that requires urgent care. She now relies on oxygen 24/7 as her medical team works tirelessly to protect the precious gift she was given.

Despite everything, Kylie continues to fight with incredible strength.
“She’s our little warrior princess,” her family shared. “Every single day, she shows us what true strength looks like.”

Behind her fight is a family carrying more than most could imagine.

Kylie has two older siblings who also need constant care. Her sister is on the autism spectrum, and her brother is nonverbal and requires specialized support. Both attend programs and therapies designed to help them grow and thrive.

Their mother, Ashley, stays home full-time, dedicating every moment to caring for her children — managing hospital stays, therapies, medications, and countless appointments. Their father, Jakob, works tirelessly as the sole provider, recently changing jobs to bring more stability to the family.

But just as they began to adjust, another challenge arose — their landlord informed them that their home is being sold. Now, the family faces the difficult reality of having to move while Kylie remains hospitalized.

“We’re trying to stay strong, but everything feels like it’s happening all at once,” they shared. “All we want is to be by Kylie’s side and get through this together.”

In addition to daily challenges, the family travels frequently between Virginia and Washington, DC for specialized care. They also make critical trips to Texas Children’s Hospital, where Kylie’s transplant was performed, for ongoing follow-ups and life-saving treatment.

These long-distance journeys, combined with medical expenses and time away from work, have created overwhelming financial pressure.

Still, through it all, their focus remains on Kylie.
“We are so grateful for the gift she’s been given,” they said. “We’re not giving up. She’s not giving up.”