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1 LB 8 OZ, NEC & SHORT BOWEL SYNDROME — ADDIE’S FIGHT THROUGH UNIMAGINABLE ODDS IS NOTHING SHORT OF A MIRACLE

When Emily Carter first met her future husband, Michael, during college, neither of them could have imagined the journey that lay ahead. What began as a simple conversation at a campus party slowly grew into a love story built on loyalty, sacrifice, and years of standing beside each other through life’s hardest moments.

After years together, the couple married barefoot on a quiet beach along the Jersey shore, dreaming of one day becoming parents.

For more than three years, Emily endured infertility treatments, failed procedures, heartbreak, and loss. The couple went through multiple unsuccessful IUI attempts and an IVF miscarriage before finally receiving the news they had prayed for — Emily was pregnant with their daughter, Addie.

“We fought for this baby for over 1,000 days,” Emily shared. “There were moments we thought it would never happen, but we never stopped believing she would come into our lives.”

Sadly, the pregnancy quickly became filled with complications.

Emily suffered from severe hyperemesis, dangerously high blood pressure, and signs of preeclampsia. At just 26 weeks pregnant, doctors rushed her into emergency care after warning that both her life and her baby’s life were at serious risk.

Only hours later, tiny Addie was born weighing just 1 pound 8 ounces.

Instead of resting in her mother’s arms, the fragile newborn was immediately taken to the NICU, surrounded by machines, tubes, and medical staff fighting to keep her alive.

“She was so small that Michael’s wedding ring could fit around her arm,” Emily recalled. “But even then, we could see she was fighting.”

Addie remained hospitalized for more than four months and faced one medical crisis after another. One of the most serious was Necrotizing Enterocolitis (NEC), a dangerous intestinal disease that mainly affects premature babies and can quickly become life-threatening.

Doctors warned the family that the chances of survival were very low.

There were nights when Emily and Michael were urgently called to the hospital after Addie’s condition suddenly worsened. At one point, her skin turned grey-blue, and doctors feared they were running out of options.

But somehow, Addie continued to hold on.

After surviving NEC, Addie later developed severe feeding problems and was diagnosed with Short Bowel Syndrome (SBS) caused by damage to her intestines from NEC and intestinal twisting known as malrotation.

At six months old, surgeons made another alarming discovery during emergency surgery — Addie’s intestines had twisted tightly enough to block blood flow. Doctors later told the family that if the surgery had been delayed any longer, she likely would not have survived.

“That was the moment we realized just how strong she truly was,” Michael said. “Every time life pushed her to the edge, she kept fighting her way back.”

Now approaching two years old, Addie still attends therapy sessions, undergoes medical treatment, and regularly travels to Boston for specialized care. Despite everything she has endured, her family says she remains full of joy, smiles, and determination.

“She has taught us more about courage than we could ever teach her,” Emily said. “She may be tiny, but her spirit is bigger than anything we’ve ever seen.”