TODDLER WITH A TRUNK-LIKE NOSE BIGGER THAN TWO TENNIS BALLS HAS BEEN LEFT UNABLE TO EAT OR SLEEP AND IS NOW IN A RACE AGAINST TIME FOR LIFE-SAVING SURGERY

A Pakistani girl with a nose larger than two tennis balls is urgently waiting for a critical surgery.
Asiya Manghrio, 15 months, from Sanghar in Sindh province, has faced hurtful comments from some relatives because of her rare condition.
According to local reports, she is living with frontonasal encephalocele, a rare condition in which brain tissue develops through an opening in the skull.
Because of the size and weight of the growth on her nose, Asiya struggles to eat comfortably, has difficulty sleeping, and often cries from discomfort.
Her worried parents fear her condition could worsen without surgery, but doctors have had to postpone the procedure for two months.

They took her to Jinnah Post Graduate Medical Centre in Karachi, where specialists examined her case.
Her mother, Fatan Achar, sold her only gold bangle to cover the cost of traveling more than 160 miles by bus to reach the hospital and pay medical expenses.
However, due to the large number of patients already waiting for treatment, doctors were unable to admit Asiya immediately.
Instead, they asked Fatan and her husband Achar, a farmer, to wait at least two months for the operation.
For Achar, who earns the equivalent of about £100 a month, the delay is deeply concerning as he worries about his daughter’s condition.
He said: “We travelled over 160 miles from our hometown to Karachi by bus and showed Asiya to several doctors, who said surgery is the only treatment available.
“They explained there is no other way to remove the growth from her face.

“But they could not provide an immediate date and asked us to wait for two months because many other patients are also awaiting surgery.
“Because of our financial situation, I cannot take my daughter to a private hospital.
“We are desperately waiting for her surgery. It is heartbreaking to see our daughter facing such challenges.”
Alongside the physical difficulties, the family also faces emotional struggles each day.
Fatan said some relatives have unfairly labeled Asiya a “curse” and have treated the family differently because of her condition.
She said: “Asiya was born by caesarean delivery and had a swollen nose.

“Within a few months, it began growing unusually fast and is now larger than a tennis ball.
“Because of its size and weight, she cannot eat properly or sleep comfortably and often cries.
“Some relatives have unfairly blamed me. They say hurtful things because my daughter was born with this condition.
“I had to sell my only gold bangle to afford the journey from Sanghar to Karachi.
“It is heartbreaking that we must return home and then travel back again in a few months for the surgery. We may have to borrow money from relatives to cover the costs.”
Neurosurgeon Dr. Lal Rehman, whom the family consulted at Jinnah Hospital, said: “Asiya has a confirmed case of frontonasal encephalocele. It is a congenital condition.

“At present, it is not affecting her breathing, but the growth could become more serious and continue increasing in size if left untreated.
“Surgical correction is the only effective treatment for this condition.”
Both Fatan and Achar hope to receive support that could help their daughter undergo surgery as soon as possible.
Fatan said: “We cannot afford a private hospital, but we cannot bear to see her struggle.
“All we want is for our daughter to have the opportunity to grow up healthy, like other children, and look forward to a bright future. Surgery is the only path that can make that possible.”