Born with a rare condition that affected the development of half his skull and brain, Jaxon Buell continues to grow in a way that has amazed everyone around him.

Jaxon Buell, from Florida, USA, was born with a rare brain condition called Microhydranencephaly, which meant that nearly half of his skull and brain had not developed before birth. Throughout the pregnancy, doctors warned Jaxon’s mother that his chances of survival were very low and advised her to consider ending the pregnancy. But his parents, Brandon and Brittany Buell, chose to continue believing in their son.

Two years ago, from the moment he was born, doctors said Jaxon might never walk or be able to communicate basic needs such as telling his parents when he was hungry. They were also unsure how long he would survive.

Yet Jax continued to grow beyond expectations, turning his journey into a remarkable story of hope.

His mother, Brittany Buell, told Orlando’s WOFL-TV, “They told us two weeks, two months, two years. Now, they are finally telling us ‘we don’t know.'”..

“They didn’t give us a definitive term for what Jaxon had in the hospital,” his father Brandon told Boston.com. “We didn’t see the word ’till we got home and looked at discharge papers and saw anencephaly. It means no brain outside of a brainstem.”

Anencephaly is a neural tube birth condition in which a child is born without parts of the brain and skull. According to the Centers for Disease Control, about one in 4,859 babies in the U.S. will be born with anencephaly each year.

Doctors at Boston Children’s Hospital gave Jaxon a slightly modified diagnosis: microhydranencephaly.

That means that he does have a brainstem, though it is thinner than it should be. His cerebellum did not form properly and his cerebral cortex is almost nonexistent.

The Buell family chronicles their journey on Facebook, posting videos, photos and updates on Jaxon.

They also have received donations through a GoFundMe page to help with their tremendous medical expenses.