11-Year-Old Girl with Rare and Aggressive Brain Cancer Is Sleeping Outside with Her Family to Save Money for Treatment

A Louisiana family is living on donations at a campground as they attempt to save money for their 11-year-old daughter’s cancer treatment.

Katie Tanton has been undergoing a clinical trial at Nationwide Children’s Hospital in Columbus, Ohio, since being diagnosed with diffuse intrinsic pontine glioma (DIPG), a rare and aggressive terminal brain cancer that primarily affects children, WBRZ and Unfiltered with Kiran reported.


The trial involves taking two daily medications and attending monthly appointments in Ohio, per the outlets. The 11-year-old’s parents, Breann and Austin Tanton, were initially driving around 1,000 miles between Denham Springs and Cincinnati for the treatment, but the expense became unsustainable.

They recently moved their family out of their home state and, for at least a week, have been sleeping outside to save money toward Katie’s medical expenses.

“Her last MRI showed that the tumor had shrunk some and was unfortunately causing some necrosis; unfortunately, the way that it was explained to us is that the brain doesn’t know the difference between the tumor and the dead tumor,” Breann told WBRZ.

 

While the tumor has been shrinking, Katie has also experienced a lot of swelling and cysts in her brain. She is often very tired and wakes up with a headache.

According to a GoFundMe set up to fund her ongoing treatment, severe headaches and blurred vision were among the initial symptoms Katie experienced before her cancer diagnosis.

Hospital tests revealed that she “has three tumors, one on her brain stem and two on her spinal cord.” Over $45,000 has been donated to the fundraiser to ease the “overwhelming” financial strain the diagnosis has placed on Katie’s family.

In addition to the GoFundMe, Austin’s sister Annie Normand is doing a separate campaign to support Katie.

“The goal is to raise $50,000 for Katie, and once I raise $50,000, I will shave my head,” said Normand, per WBRZ.

Tanton explained to the outlet that the family had to revamp their lifestyle to ensure Katie can continue to receive the medical care she needs.

“Kind of changed how we were doing things because funds were getting low and we kind of wanted to hang on to the last bit that we had for when we finally found a rental home, so we decided to start camping,” she told WBRZ.

Cajun Navy 2016 has offered to pay the family’s rent for the first four to six months once they find accommodation in Ohio, per WBRZ.

“We never imagined we would receive that kind of support and now with what the Cajun Navy is going to do for us, it’s just what we’ve been praying for,” said Breann, per Unfiltered with Kiran.